MULTI-STAKEHOLDER APPROACH TO RARE DISEASE CARE IN LATIN AMERICA

被引：0
|
作者：
Rico, M. [1 ]
Villela, Martinez C. [2 ]
Borga, P. [3 ]
Salvatierra, R. [4 ]
机构：
[1] Amer Hlth Fdn, Bogota, Colombia
[2] Amer Hlth Fdn, Tijuana, BCN, Mexico
[3] Amicus Therapeut, Marlow, England
[4] Amer Hlth Fdn, Washington, DC USA
来源：
VALUE IN HEALTH | 2024年 / 27卷 / 06期
关键词：
D O I：
暂无
中图分类号：
F [经济];
学科分类号：
02 ;
摘要：
HPR81
引用
收藏
页码：S208 / S208
页数：1
相关论文
共 50 条
  • [1] Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi-stakeholder workshop
    Rosa Spencer-Tansley
    Nick Meade
    Farhana Ali
    Amy Simpson
    Amy Hunter
    BMC Health Services Research, 22
  • [2] Mental health care for rare disease in the UK - recommendations from a quantitative survey and multi-stakeholder workshop
    Spencer-Tansley, Rosa
    Meade, Nick
    Ali, Farhana
    Simpson, Amy
    Hunter, Amy
    BMC HEALTH SERVICES RESEARCH, 2022, 22 (01)
  • [3] THE PATIENT ACCESS LANDSCAPE FOR RARE DISEASE MEDICINES IN BRAZIL: A MULTI-STAKEHOLDER PERSPECTIVE
    Rico, M.
    Borga, P.
    Salvatierra, R.
    VALUE IN HEALTH, 2024, 27 (06) : S213 - S214
  • [4] Multi-stakeholder sessions on major innovation topics in rare disease clinical trials
    Bodden, Daniel
    Schoenen, Stefanie
    Wied, Stephanie
    Verbeeck, Johan
    Dirani, Maya
    Daya, Hiba Abou
    Heussen, Nicole
    Molenberghs, Geert
    Hilgers, Ralf-Dieter
    Nabbout, Rima
    ORPHANET JOURNAL OF RARE DISEASES, 2024, 19 (01)
  • [5] An Accountability Approach to Resolve Multi-stakeholder Conflicts
    Yanagisawa, Yukiko
    Yokote, Yasuhiko
    COMPUTER SAFETY, RELIABILITY, AND SECURITY (SAFECOMP 2021), 2021, 12853 : 175 - 186
  • [6] Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care Research priorities in MS in LATAM
    Rojas, Juan, I
    Carnero Contentti, Edgar
    Abad, Patricio
    Aguayo, Adriana
    Alonso, Ricardo
    Bauer, Johana
    Becker, Jefferson
    Bustos, Andrea K.
    Carcamo, Claudia A.
    Carra, Adriana
    Correa Diaz, Edgard P.
    Correale, Jorge
    Cristiano, Edgardo
    Diaz, Alejandro J.
    Fernandez Liguori, Nora
    Flores, Jose
    Fruns, Manuel
    Garcea, Orlando
    Giachello, Susana M.
    Godoy, Melisa D.
    Gracia, Fernando
    Hamuy, Victor F.
    Henestroza, Paula R.
    Navarra, Javier A.
    Navas, Carlos
    Patrucco, Liliana
    Perez Bruno, Magdalena
    Prato, Andrea S.
    Rivera, Victor M.
    Rosa Martinez, Alma R.
    Vanotti, Sandra
    Vazquez, Macarena
    Vizcarra, Darwin
    Ysrraelit, Maria C.
    Alonso Serena, Marina
    MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2021, 53
  • [7] Implementation of Pharmacogenetics in Primary Care: A Multi-Stakeholder Perspective
    Rigter, Tessel
    Jansen, Marleen E.
    de Groot, Jordy M.
    Janssen, Susan W. J.
    Rodenburg, Wendy
    Cornel, Martina C.
    FRONTIERS IN GENETICS, 2020, 11
  • [8] Multi-stakeholder engagement
    Blenkus, M. Gabrijelcic
    Kronegger, L.
    Pushkarev, N.
    Robnik, M.
    Sotlar, I.
    EUROPEAN JOURNAL OF PUBLIC HEALTH, 2020, 30
  • [9] The Multi-Stakeholder Movement For Primary Care Renewal And Reform
    Grundy, Paul
    Hagan, Kay R.
    Hansen, Jennie Chin
    Grumbach, Kevin
    HEALTH AFFAIRS, 2010, 29 (05) : 791 - 798
  • [10] MaaS Implications in the Smart City: A Multi-Stakeholder Approach
    Lopez-Carreiro, Iria
    Monzon, Andres
    Lopez, Elena
    SUSTAINABILITY, 2023, 15 (14)
12345