Pilot Testing Educational Videos for Black Caregivers Receiving Home Hospice Care

被引:0
|
作者
Park, Taeyoung [1 ]
Parillon, Brittney [1 ]
Cruz-Oliver, Dulce M. [2 ]
Sloan, Danetta H. [3 ]
Reid, M. Cary [4 ]
Czaja, Sara [4 ]
Adelman, Ronald [5 ]
Dignam, Ritchell [6 ]
Phongtankuel, Veerawat [4 ]
机构
[1] Weill Cornell Med, Dept Med, Div Geriatr & Palliat Med, 525 E 68th St Box 39, New York, NY 10065 USA
[2] Johns Hopkins Univ Hosp, Dept Med, Div Gen Internal Med, Palliat Med Sect,Med, Baltimore, MD USA
[3] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Hlth Behav & Soc, Baltimore, MD USA
[4] Weill Cornell Med, Div Geriatr & Palliat Med, Dept Med, Med, New York, NY 10065 USA
[5] Weill Cornell Med, Div Geriatr & Palliat Med, Dept Med, Clin Med, New York, NY 10065 USA
[6] VNS Hlth, New York, NY USA
关键词
Black; caregiver; education; hospice; video; PREPAREDNESS; EXPERIENCES;
D O I
10.1097/NJH.0000000000001038
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Black caregivers face distinct challenges in symptom management when providing end-of-life care. Educational interventions may improve caregiver preparedness and competency by providing information on symptom management. This study pilot tested 4 culturally tailored caregiver educational videos about symptom management for Black caregivers receiving home hospice care at a large, urban, nonprofit hospice organization to determine feasibility and acceptability, along with their potential impact on caregiver outcomes. All participants (N = 10) agreed to watch the 4 videos and found the videos to be helpful; 90% (n = 9) shared that they would recommend them to other Black caregivers receiving home hospice care. Total preparedness scores increased from a mean score of 23.5 preintervention to 28.3 postintervention. Caregiver competency scores increased from 13.8 at preintervention to 14.3 at postintervention. Caregivers' comfort and knowledge scores increased from preintervention to postintervention for all 7 end-of-life topics presented in the 4 videos. This study found that it was feasible and acceptable to show Black caregivers culturally tailored educational videos related to issues regarding symptom management. Many found the videos to be helpful and the topics to be relatable. There were trends toward improvement in preparedness and competency. Future studies examining efficacy are needed to determine the impact of this intervention.
引用
收藏
页码:224 / 230
页数:7
相关论文
共 50 条
  • [1] The evidence supporting educational videos for patients and caregivers receiving hospice and palliative care: A systematic review
    Cruz-Oliver, Dulce M.
    Rueda, Angel Pacheco
    Viera-Ortiz, Liliana
    Washington, Karla T.
    Oliver, Debra Parker
    PATIENT EDUCATION AND COUNSELING, 2020, 103 (09) : 1677 - 1691
  • [2] The Evidence Supporting Educational Videos for Patients and Caregivers Receiving Hospice and Palliative Care: A Systematic Review
    Pacheco, A. L.
    Cruz, D.
    JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2021, 69 : S274 - S275
  • [3] INTERVENTIONS FOR FAMILY CAREGIVERS RECEIVING PALLIATIVE/HOSPICE CARE AT HOME: A SCOPING REVIEW
    Park, Taeyoung
    Alshakhs, Sulaiman
    Sweet, Elisabeth
    McDarby, Meghan
    Czaja, Sara
    Reid, Cary
    Adelman, Ronald
    Phongtankuel, Veerawat
    INNOVATION IN AGING, 2022, 6 : 861 - 862
  • [4] Black Caregivers' Symptom Management, Cultural, and Religious Experiences With Home Hospice Care
    Park, Taeyoung
    Sloan, Danetta H.
    Cruz-Oliver, Dulce M.
    Reid, Manney Cary
    Czaja, Sara
    Adelman, Ronald D.
    Dignam, Ritchell
    Phongtankuel, Veerawat
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2023, 66 (02) : 116 - 122.e1
  • [5] BLACK CAREGIVERS′ CULTURAL, RELIGIOUS, AND SYMPTOM MANAGEMENT EXPERIENCES WITH HOME HOSPICE CARE
    Park, Taeyoung
    Sloan, Danetta
    Cruz-Oliver, Dulce Maria
    Reid, M. Cary
    Czaja, Sara
    Adelman, Ronald
    Dignam, Ritchell
    Phongtankuel, Veerawat
    INNOVATION IN AGING, 2023, 7 : 763 - 763
  • [6] Interventions for Family Caregivers of Patients Receiving Palliative/Hospice Care at Home: A Scoping Review
    Alshakhs, Sulaiman
    Park, Taeyoung
    McDarby, Meghan
    Reid, M. Cary
    Czaja, Sara
    Adelman, Ronald
    Sweet, Elisabeth
    Jedlicka, Caroline M.
    Delgado, Diana
    Phongtankuel, Veerawat
    JOURNAL OF PALLIATIVE MEDICINE, 2024, 27 (01) : 112 - 127
  • [7] Receiving care at home at end of life: characteristics of patients receiving Hospice at Home care
    Tyrer, F
    Exley, C
    FAMILY PRACTICE, 2005, 22 (06) : 644 - 646
  • [9] Baseline Characteristics of Participants in a Telenovela Intervention for Caregivers of Patients Receiving Hospice Care: A Pilot Study
    Milner, G. E.
    Budhathoki, C.
    Cruz-Oliver, D. M.
    JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2020, 70 : S247 - S247
  • [10] Burden Experienced by Informal Caregivers in Home Hospice Care
    Phongtankuel, V.
    Shalev, A.
    Adelman, R.
    Prigerson, H.
    Teresi, J.
    Dignam, R.
    Baughn, R.
    Reid, M.
    JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2018, 66 : S221 - S221