Digitally-enabled, person-centred care (PCC) in allergen immunotherapy: An ARIA-EAACI Position Paper

被引：2

作者：

Pfaar, Oliver ^{[1
,39
]}

Sousa-Pinto, Bernardo ^{[2
,3
]}

Papadopoulos, Nikolaos G. ^{[4
]}

Larenas-Linnemann, Desiree E. ^{[5
]}

Ordak, Michal ^{[6
]}

Torres, Maria J. ^{[7
]}

Moesges, Ralph ^{[8
,9
]}

Klimek, Ludger ^{[10
,11
]}

Zuberbier, Torsten ^{[12
,13
,14
,15
]}

Matricardi, Paolo M. ^{[12
,13
,14
,15
,16
]}

Berger, Uwe E. ^{[17
,18
]}

Berger, Markus ^{[17
,18
,19
]}

Dramburg, Stephanie ^{[14
,16
]}

Mahler, Vera ^{[20
]}

Toppila-Salmi, Sanna K. ^{[21
,22
,23
]}

Bergmann, Karl-Christian ^{[12
,13
,15
]}

Ollert, Markus ^{[24
,25
]}

Tripodi, Salvatore ^{[26
]}

Jutel, Marek ^{[27
,28
]}

Agache, Ioana ^{[29
]}

Eguiluz-Gracia, Ibon ^{[7
]}

Canonica, G. Walter ^{[30
,31
]}

Akdis, Cezmi A. ^{[32
]}

Sokolowska, Milena ^{[32
]}

Sofiev, Mikhail ^{[33
]}

Shamji, Mohamed H. ^{[34
,35
]}

Czarlewski, Wienczyslawa ^{[36
,37
]}

Fonseca, Joao A. ^{[2
,3
]}

Bedbrook, Anna ^{[37
,38
]}

Bousquet, Jean ^{[12
,13
,14
,15
,37
,38
]}

机构：

[1] Philipps Univ Marburg, Univ Hosp Marburg, Dept Otorhinolaryngol, Sect Rhinol & Allergy, Marburg, Germany

[2] Univ Porto, Fac Med, MEDCIDS Dept Community Med, Porto, Portugal

[3] Univ Porto, Fac Med, CINTESIS RISE Hlth Res Network, Porto, Portugal

[4] Univ Athens, Allergy Dept, Pediat Clin 2, Athens, Greece

[5] Med Clin Fdn & Hosp, Ctr Excellence Asthma & Allergy, Mexico City, Mexico

[6] Med Univ Warsaw, Fac Pharm, Dept Pharmacotherapy & Pharmaceut Care, Warsaw, Poland

[7] Univ Malaga, Hosp Reg Univ Malaga, Allergy Unit, IBIMA Plataforma BIONAND,RICORS Enfermedades Infl, Malaga, Spain

[8] Univ Cologne, Inst Med Stat & Computat Biol, Cologne, Germany

[9] ClinCompetence Cologne GmbH, Cologne, Germany

[10] Univ Med Mainz, Dept Otolaryngol Head & Neck Surg, Mainz, Germany

[11] Ctr Rhinol & Allergol, Wiesbaden, Germany

[12] Charite Univ Med Berlin, Inst Allergol, Berlin, Germany

[13] Free Univ Berlin, Berlin, Germany

[14] Humboldt Univ, Berlin, Germany

[15] Fraunhofer Inst Translat Med & Pharmacol ITMP, Immunol & Allergol, Berlin, Germany

[16] Charite Univ Med Berlin, Dept Pediat Resp Med Immunol & Crit Care Med, Berlin, Germany

[17] Univ Innsbruck, Dept Bot, Innsbruck, Austria

[18] European Aeroallergen Network EAN, Vienna, Austria

[19] Wiener Gesundheitsverbund, Dept Oto Rhino Laryngol, Klin Hietzing, Vienna, Austria

[20] Paul Ehrlich Inst, Langen, Germany

[21] Univ Eastern Finland, Kuopio Univ Hosp, Dept Otorhinolaryngol, Kuopio, Finland

[22] Helsinki Univ Hosp, Inflammat Ctr, Dept Allergy, Helsinki, Finland

[23] Univ Helsinki, Helsinki, Finland

[24] Luxembourg Inst Hlth, Dept Infect & Immun, Esch Sur Alzette, Luxembourg

[25] Odense Univ Hosp, Allergy Ctr, Odense Res Ctr Anaphylaxis ORCA, Dept Dermatol, Odense, Denmark

[26] Policlin Casilino, Allergy Unit, Rome, Italy

[27] Wroclaw Med Univ, Dept Clin Immunol, Wroclaw, Poland

[28] ALL MED Med Res Inst, Wroclaw, Poland

[29] Transylvania Univ Brasov, Fac Med, Brasov, Romania

[30] Humanitas Univ, Dept Biomed Sci, Milan, Italy

[31] IRCCS Humanitas Res Hosp, Asthma & Allergy Unit, Milan, Italy

[32] Univ Zurich, Swiss Inst Allergy & Asthma Res SIAF, Davos, Switzerland

[33] Finnish Meteorol Inst FMI, Helsinki, Finland

[34] Imperial Coll, Natl Heart & Lung Inst, London, England

[35] NIHR Imperial Biomed Res Ctr, London, England

[36] Med Consulting Czarlewski, Levallois Perret, France

[37] MASK Air, Montpellier, France

[38] ARIA, Montpellier, France

[39] Philipps Univ Marburg, Univ Hosp Marburg, Dept Otorhinolaryngol, Sect Rhinol & Allergy, D-35043 Marburg, Germany

来源：

ALLERGY | 2024年 / 79卷 / 08期

关键词：

allergen immunotherapy; allergy; AllergyMonitor (R); digital biomarkers; MASK-air (R); WORLD-HEALTH-ORGANIZATION; RESPIRATORY-DISEASES; RHINITIS; ASTHMA; PRODUCTIVITY; SEVERITY; IMPACT; TRIALS; RHINOCONJUNCTIVITIS; DEFINITION;

D O I：

10.1111/all.16135

中图分类号：

R392 [医学免疫学];

学科分类号：

100102 ;

摘要：

In rhinitis and asthma, several mHealth apps have been developed but only a few have been validated. However, these apps have a high potential for improving person-centred care (PCC), especially in allergen immunotherapy (AIT). They can provide support in AIT initiation by selecting the appropriate patient and allergen shared decision-making. They can also help in (i) the evaluation of (early) efficacy, (ii) early and late stopping rules and (iii) the evaluation of (carried-over) efficacy after cessation of the treatment course. Future perspectives have been formulated in the first report of a joint task force (TF)-Allergic Rhinitis and Its Impact on Asthma (ARIA) and the European Academy of Allergy and Clinical Immunology (EAACI)-on digital biomarkers. The TF on AIT now aims to (i) outline the potential of the clinical applications of mHealth solutions, (ii) express their current limitations, (iii) make proposals regarding further developments for both clinical practice and scientific purpose and (iv) suggest which of the tools might best comply with the purpose of digitally-enabled PCC in AIT.

引用

页码：2037 / 2050

页数：14

共 12 条

[1] Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
Bousquet, J.
Bedbrook, A.
Czarlewski, W.
Onorato, G. L.
Arnavielhe, S.
Laune, D.
Mathieu-Dupas, E.
Fonseca, J.
Costa, E.
Lourenco, O.
Morais-Almeida, M.
Todo-Bom, A.
Illario, M.
Menditto, E.
Canonica, G. W.
Cecchi, L.
Monti, R.
Napoli, L.
Ventura, M. T.
De Feo, G.
Fokkens, W. J.
Chavannes, N. H.
Reitsma, S.
Cruz, A. A.
da Silva, J.
Serpa, F. S.
Larenas-Linnemann, D.
Perez, J. M. Fuentes
Huerta-Villalobos, Y. R.
Rivero-Yeverino, D.
Rodriguez-Zagal, E.
Valiulis, A.
Dubakiene, R.
Emuzyte, R.
Kvedariene, V.
Annesi-Maesano, I.
Blain, H.
Bonniaud, P.
Bosse, I.
Dauvilliers, Y.
Devillier, P.
Fontaine, J. F.
Pepin, J. L.
Pham-Thi, N.
Portejoie, F.
Picard, R.
Roche, N.
Rolland, C.
Schmidt-Grendelmeier, P.
Kuna, P.
CLINICAL AND TRANSLATIONAL ALLERGY, 2019, 9
[2] ARIA-EAACI care pathways for allergen immunotherapy in respiratory allergy
Bousquet, Jean
Pfaar, Oliver
Agache, Ioana
Bedbrook, Anna
Akdis, Cezmi A.
Canonica, G. Walter
Chivato, Tomas
Al-Ahmad, Mona
Abdul Latiff, Amir H.
Ansotegui, Ignacio J.
Bachert, Claus
Baharuddin, Abdullah
Bergmann, Karl-Christian
Bindslev-Jensen, Carsten
Bjermer, Leif
Bonini, Matteo
Bosnic-Anticevich, Sinthia
Bosse, Isabelle
Brough, Helen A.
Brussino, Luisa
Calderon, Moises A.
Caraballo, Luis
Cardona, Victoria
Carreiro-Martins, Pedro
Casale, Tomas
Cecchi, Lorenzo
Cepeda Sarabia, Alfonso M.
Chkhartishvili, Ekaterine
Chu, Derek K.
Cirule, Ieva
Cruz, Alvaro A.
Czarlewski, Wienczyslawa
del Giacco, Stefano
Demoly, Pascal
Devillier, Philippe
Dokic, Dejan
Durham, Stephen L.
Ebisawa, Motohiro
El-Gamalt, Yehia
Emuzyte, Regina
Gamkrelidze, Amiran
Fauquert, Jean Luc
Fiocchi, Alessandro
Fokkens, Wytske J.
Fonseca, Joao A.
Fontaine, Jean-Francois
Gawlik, Radoslaw
Gelincik, Asli
Gemicioglu, Bilun
Gereda, Jose E.
CLINICAL AND TRANSLATIONAL ALLERGY, 2021, 11 (04)
[3] MASK 2017: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma multimorbidity using real-world-evidence
Bousquet, J.
Arnavielhe, S.
Bedbrook, A.
Bewick, M.
Laune, D.
Mathieu-Dupas, E.
Murray, R.
Onorato, G. L.
Pepin, J. L.
Picard, R.
Portejoie, F.
Costa, E.
Fonseca, J.
Lourenco, O.
Morais-Almeida, M.
Todo-Bom, A.
Cruz, A. A.
da Silva, J.
Serpa, F. S.
Illario, M.
Menditto, E.
Cecchi, L.
Monti, R.
Napoli, L.
Ventura, M. T.
De Feo, G.
Larenas-Linnemann, D.
Fuentes Perez, M.
Huerta Villabolos, Y. R.
Rivero-Yeverino, D.
Rodriguez-Zagal, E.
Amat, F.
Annesi-Maesano, I.
Bosse, I.
Demoly, P.
Devillier, P.
Fontaine, J. F.
Just, J.
Kuna, T. P.
Samolinski, B.
Valiulis, A.
Emuzyte, R.
Kvedariene, V.
Ryan, D.
Sheikh, A.
Schmidt-Grendelmeier, P.
Klimek, L.
Pfaar, O.
Bergmann, K. C.
Mosges, R.
CLINICAL AND TRANSLATIONAL ALLERGY, 2018, 8
[4] Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma (vol 9, 16, 2019)
Bousquet, J.
CLINICAL AND TRANSLATIONAL ALLERGY, 2019, 9 (01)
[5] Person-centred care in allergen immunotherapy in a digital era
Ng, Chew Lip
Wang, De Yun
ALLERGY, 2024, 79 (08) : 2034 - 2036
[6] MASK 2017: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma multimorbidity using real-world-evidence (vol 8, 45, 2018)
Bousquet, J.
CLINICAL AND TRANSLATIONAL ALLERGY, 2019, 9 (01)
[7] Digitally-enabled, patient-centred care in rhinitis and asthma multimorbidity: The ARIA-MASK-air® approach
Bousquet, Jean
Anto, Josep M.
Sousa-Pinto, Bernardo
Czarlewski, Wienczyslawa
Bedbrook, Anna
Haahtela, Tari
Klimek, Ludger
Pfaar, Oliver
Kuna, Piotr
Kupczyk, Maciej
Regateiro, Frederico S.
Samolinski, Boleslaw
Valiulis, Arunas
Yorgancioglu, Arzu
Arnavielhe, Sylvie
Basagana, Xavier
Bergmann, Karl C.
Bosnic-Anticevich, Sinthia
Brussino, Luisa
Canonica, G. Walter
Cardona, Victoria
Cecchi, Lorenzo
Chaves-Loureiro, Claudia
Costa, Elisio
Cruz, Alvaro A.
Gemicioglu, Bilun
Fokkens, Wytske J.
Ivancevich, Juan Carlos
Kraxner, Helga
Kvedariene, Violeta
Larenas-Linnemann, Desiree E.
Laune, Daniel
Louis, Renaud
Makris, Michael
Maurer, Marcus
Melen, Erik
Micheli, Yann
Morais-Almeida, Mario
Mullol, Joaquim
Niedoszytko, Marek
Okamoto, Yoshitaka
Papadopoulos, Nikolaos G.
Patella, Vincenzo
Nhan Pham-Thi
Rouadi, Philip W.
Sastre, Joaquin
Scichilone, Nicola
Sheikh, Aziz
Sofiev, Mikhail
Taborda-Barata, Luis
CLINICAL AND TRANSLATIONAL ALLERGY, 2023, 13 (01)
[8] Implementation and transfer of successful digitally enabled integrated person-centred care solutions across Europe - The JADECARE Joint Action
Txarramendieta, Jon
Fullaondo, Ane
Rimmele, Martina
de Manuel, Esteban
INTERNATIONAL JOURNAL OF INTEGRATED CARE, 2022, 22
[9] Handling of allergen immunotherapy in the COVID-19 pandemic: An ARIA- EAACI-AeDA-GPA-DGAKI Position Paper (Pocket-Guide)
Pfaar, O.
Klimek, L.
Worm, M.
Bergmann, K-C
Bieber, T.
Buhl, R.
Buters, J.
Darsow, U.
Keil, T.
Kleine-Tebbe, J.
Lau, S.
Maurer, M.
Merk, H.
Mosges, R.
Saloga, J.
Staubach, P.
Stute, P.
Rabe, K.
Rabe, U.
Vogelmeier, C.
Biedermann, T.
Jung, K.
Schlenter, W.
Ring, J.
Chaker, A.
Wehrmann, W.
Becker, S.
Muelleneisen, N.
Nemat, K.
Czech, W.
Wrede, H.
Brehler, R.
Fuchs, T.
Tomazic, P-, V
Aberer, W.
Fink-Wagner, A.
Horak, F.
Woehrl, S.
Niederberger-Leppin, V
Pali-Schoell, I
Pohl, W.
Roller-Wirnsberger, R.
Spranger, O.
Valenta, R.
Akdis, M.
Akdis, C.
Hoffmann-Sommergruber, K.
Jutel, M.
Matricardi, P.
Spertini, F.
LARYNGO-RHINO-OTOLOGIE, 2020, 99 (10) : 676 - 679
[10] Transfer and adoption of digitally enabled integrated person-centred care good practices: which challenges and key elements need to be addressed for a successful transfer?
Txarramendieta, Jon
Hamu, Yhasmine
INTERNATIONAL JOURNAL OF INTEGRATED CARE, 2022, 22

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