caregivers;
Chinese culture;
sister-in-law;
sibling;
developmental disabilities;
D O I:
10.1177/2333393615604169
中图分类号:
R47 [护理学];
学科分类号:
1011 ;
摘要:
A phenomenological method was used in this study to examine the experiences of women caring for the husband's sibling with developmental disabilities (DDs) with the aim of establishing how and why they came to care and continued to care for them. Three themes emerged after drawing on stories shared by seven women: for the sake of my husband, powerlessness, and trade-off between cost and rewards. The findings of this study show that Taiwanese women accept the cultural norms, thus accepting the caregiving responsibility. Reciprocity did not help determine whether women started caring for the husband's sibling with DD. However, when an imbalance in reciprocity is present, women experience negative emotions that often result in tension within the family. Positive factors contributed by the husband and parents-in-law can facilitate the work of caregivers by ameliorating physical pain and psychological distress that can occur during the caregiving process.
机构:
Brown Univ, Dept Pediat, Alpert Med Sch, Providence, RI 02912 USABrown Univ, Dept Pediat, Alpert Med Sch, Providence, RI 02912 USA
Kao, B.
Romero-Bosch, L.
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机构:
Brown Univ, Dept Psychiat & Human Behav, Alpert Med Sch, Bradley Hasbro Childrens Res Ctr, Providence, RI 02912 USABrown Univ, Dept Pediat, Alpert Med Sch, Providence, RI 02912 USA
Romero-Bosch, L.
Plante, W.
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机构:
Brown Univ, Dept Psychiat & Human Behav, Alpert Med Sch, Bradley Hasbro Childrens Res Ctr, Providence, RI 02912 USABrown Univ, Dept Pediat, Alpert Med Sch, Providence, RI 02912 USA
Plante, W.
Lobato, D.
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机构:
Brown Univ, Dept Psychiat & Human Behav, Alpert Med Sch, Bradley Hasbro Childrens Res Ctr, Providence, RI 02912 USABrown Univ, Dept Pediat, Alpert Med Sch, Providence, RI 02912 USA
机构:
Seoul Natl Univ, Grad Sch Nursing, 103 Daehak Ro, Seoul 110799, South KoreaSeoul Natl Univ, Grad Sch Nursing, 103 Daehak Ro, Seoul 110799, South Korea
Kwon, Eun Jin
Yi, Myungsun
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机构:
Seoul Natl Univ, Res Inst Nursing Sci, Coll Nursing, Seoul, South KoreaSeoul Natl Univ, Grad Sch Nursing, 103 Daehak Ro, Seoul 110799, South Korea
机构:
Univ Birmingham, Sch Psychol, Birmingham, W Midlands, EnglandUniv Birmingham, Sch Psychol, Birmingham, W Midlands, England
Heer, Kuljit
Rose, John
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机构:
Univ Birmingham, Sch Psychol, Birmingham, W Midlands, England
St Andrews Hlth Care, Acad Unit, Northampton, EnglandUniv Birmingham, Sch Psychol, Birmingham, W Midlands, England
Rose, John
Larkin, Michael
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机构:
Univ Birmingham, Sch Psychol, Birmingham, W Midlands, EnglandUniv Birmingham, Sch Psychol, Birmingham, W Midlands, England
Larkin, Michael
Singhal, Nidhi
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机构:
Natl Ctr Autism, Res & Dev Action Autism AFA, New Delhi, IndiaUniv Birmingham, Sch Psychol, Birmingham, W Midlands, England
机构:
Yonsei Univ, Coll Nursing, Seoul, South Korea
Yonsei Univ, Brain Korea FOUR Project 21, Seoul, South Korea
Yonsei Univ, Grad Sch, Dept Nursing, Seoul, South KoreaYonsei Univ, Coll Nursing, Seoul, South Korea
Lee, Hooyun
Kim, Kyua
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机构:
Yonsei Univ, Coll Nursing, Seoul, South Korea
Yonsei Univ, Brain Korea FOUR Project 21, Seoul, South Korea
Yonsei Univ, Grad Sch, Dept Nursing, Seoul, South KoreaYonsei Univ, Coll Nursing, Seoul, South Korea
Kim, Kyua
Kim, Hyelim
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机构:
Yonsei Univ, Grad Sch, Dept Nursing, Seoul, South KoreaYonsei Univ, Coll Nursing, Seoul, South Korea
机构:
Kyungpook Natl Univ, Res Inst Nursing Sci, Coll Nursing, Daegu, South Korea
Kyungpook Natl Univ, Cardiovasc Res Inst, 680 Gukchaebosangro, Daegu 41944, South KoreaKyungpook Natl Univ, Res Inst Nursing Sci, Coll Nursing, Daegu, South Korea