The Person Behind the Face of Fetal Alcohol Spectrum Disorder: Student Experiences and Family and Professionals' Perspectives on FASD

This article describes the individual experiences of 5 students with Fetal Alcohol Spectrum Disorders (FASD) living in rural and urban Alaska. The article is based on the results of a 3 year qualitative study using interviews with and observations of the students, members of their family, and educational and medical professionals with whom they arc involved. Findings highlight several major themes that include: (a) the person behind the face of FASD; (b) experiences of students with FASD including situations of competence and vulnerability; (c) anticipated trajectories that lead the students towards experiences of separateness and isolation; and (d) the social and cultural stigma of FASD. The article concludes with recommendations that service providers, educators, and policy makers can use to improve the education and community life for students with fetal alcohol spectrum disorders.